Tourette’s Syndrome is a hereditary condition that causes acute, uncontrollable muscle spasm (ticking) and uncontrollable verbal outbursts in more than 250,000 people in North America. It is one of the least known, least understood, most undiagnosed and misdiagnosed conditions in North America today. It affects all races and ethnicities. There is no known cure, though therapies and some medications have been known to lessen its affects. Some conditions lessen as people age and some worsen.
Here for the first time is a collection of short stories written by members of the Tourette’s community –Touretters- People living with it and their family members who support them. This collection was the idea of Chris Mason, who collected the stories and who also has Tourette’s. Many of the authors have chosen to remain anonymous. Sensitivity to TS has lagged behind the perception of those with other debilitating conditions. The stories are touching, powerful, maddening, and filled with enough lessons to begin to enlighten us all about Tourette’s Syndrome.
“This is a wonder book about the life of young people & adults who have Tourettes, OCD, PDD & COPROLALIA, ADD, as our grandson is living this life. Many of the presentations are heartbreaking. The most heart breaking is to learn many professionals are not aware of the disorder or do not believe the children when they present what is wrong with them. In addition of over loading the child with drugs.
Our grandson does have a part in this book, he has faced many obstacles in his life tme. From being locked in a closet “to calm him down” this does not work, is a very out of date behavioral method. Teased by others, in addition to school staff not realizing how to work with a child that has Tourettes.
He attended 4 different schools all professing to have the knowledge & means to teach him, they were all designed special need classes. The staff mean to do good, the reality is most of the staff are not equipped to provide the needs for the student.
His parents have fought for their child to have him educated correctly, right down to correct medical care. As many parents have traveled the road to find help for their child, when one reads the accounts of the children & adults, it presents
a life most will never know.
Searching for correct diagnosis, medical care and educational needs to be met is exhausting for parents and the child.
Our grandson is now attending a very wonderful school, the staff in all departments are educated to the needs of each student.
He is a prolific writer, he has a great sense of humor along with the keen sense of characterization of who you are..and correctly.
Our hope is for this book to be read by many, most importantly by professionals who come in contact with our children.” by Mimi
Teresa Edmond-Sargeant is an Orlando, FL-based poet, author and journalist originally from northern New Jersey. Her poetry has appeared in anthologies featuring NJ poets. During her time as a reporter in Jersey, she won two NJ Press Association awards.
In 2006, she published her debut poetry book, “How Fate’s Confusion Connects”; the book’s second edition will be released later in 2014. She is the author of three (so far;-)) Amazon Kindle ebooks: “Eve the First,” “An Estella Exclusive” and “Ethical Strains,” all short stories.
Edmond-Sargeant is a member of the Florida State Poets Association. She is now a staff writer for The Apopka Chief, a newspaper that covers the Apopka, FL, area